Saturday Morning

Last night went pretty well.  Levi continues to do well. The only problem we are having is his movement.  The nurse and I do not agree about the source of the movement.  She feels Levi is agitated from laying still and twisting his head and body purposely.  Therefore she keeps ordering more paralytic drug to make him lie still.  I feel the movements are involuntary and caused by the medicine wearing off.  The movements remind me of a catterpiller forming its crysalys if you have ever observed that.  Very rigid and jerky.  It looks uncontrolled.  He will be sleeping soundly and all of a sudden the movement starts and jt startles him awake.  That doesnt seem voluntary to me. Also, yesterday he didn't even need to be sedated he was so calm and cooperative.  They even lossened his hand restraints a bit so he could play with his balloon.  This too makes me feel it's the Meds. We will see when a new nurse comes in.  If it is the meds, everytime she gives him more its going to have the same results eventually.  Whatever the cause, the problem is, too much movement will move the vent and rub on his trachea adding to scar tissue.  We don't want to be back were we started.  Please be praying his jerky movements stop whatever the cause.

New nurses in and they agree with me that this is not voluntary! They are changing the dosage of his Meds to keep him still.  Pray it works!  The cath was removed  as well so pray his bladder cooperates.