Levi has slept great this evening. Everyone is surprised at how how his tolerance is for the sedation Meds and they have to keep uping them. They finally quit using the paralytic due to its side effects and have used benedryl, which has knocked him out pretty good on top of the morphin and other sedation drug. The frequency of the jerky movements has diminished. Our ENT stopped in and said he looked wonderful. He saw Levi thrash and said he looked like a fish on a hook. Guess that pretty much describes it. He felt as long as we can calm him we should be okay. It makes sleeping hard though because I am scared to take my eyes off him as you don't know when the drugs will wear off and the thrashing begin!
The plan is: Sunday the rubber and drain comes out. Monday his feedings will be discontinued in the evenings and steroids started. Tuesday at 5pm will go back to surgery to have a bronchoscope done. If all looks well they will put in a smaller vent tube and once fully awake they will take him off the vent. This may happen Wednesday morning depending how long sedation takes to wear off. Wednesday or Thursday we should move to the step down floor for a couple of days.
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